Not unlike the unexpected diagnosis of any debilitating disease, the doctor’s prognosis will naturally leave the immediate family members feeling lost and confused. During this period of confusion, one may be possess the ability to ask some very necessary and very important questions. In the same token, one may also find that they are in a state of shock, and are unable to ask questions that may very well impact their lives in unforeseen ways. This website is intended to serve as a forum for the families that have been impacted by Sickle Cell Disease and are living with it in stride. We encourage you to reach out to the resources that we provide; whether that means emailing another parent of a child with Sickle Cell Disease; detailing your own child’s steps to recovery; or utilizing the advocates and resources that we provide.